We have decided to have an awareness board for fibromyalgia up at health and craft fairs and our county fair. Might even see if HyVee will let us set up too. Candle sale is going good. Hoping to become a non profit organization soon. It has been a hard day for me today. My flare is horrible. The back of my neck is hurting so much it's hard to keep up. Pain is shooting all the way down my back and down my left arm. I am weak and tired. Soon I think I will be heading to my heat pad. Anyway I would like to say our support group- www.facebook.com/mfsg247 is going well. The group of ladies(so far) are awesome individuals. They have similar aches and pains and no one to share with too. We all want to find a cure by donating to research. If you would like to make a donation to our group please go to the site listed above and let us know. Or mail it to:
Maryville Fibromyalgia Support Group
610 E. Jenkins
Maryville, Mo.
64468
Living with Fibromyalgia. Also goes along with www.facebook.com/mfsg247. www.igive.com/mfsg247.
Followers
Wednesday, January 25, 2012
Saturday, January 21, 2012
Our support group-Maryville Fibromyalgia Support Group has started an AtHome America candle fundraiser. I am so excited to get this group growing and to send money for research. I am feeling blue today, maybe the weather,lack of sleep last night or just plan cabin fever. But I keep going and do my best. As my new motto says: I'll Try Again Tomorrow.
Tuesday, January 17, 2012
Last night was the beginning of a new chapter in my life. I started the Maryville Fibromyalgia Support Group. I feel that God has left me here for a reason and that reason is to help others with Fibromyalgia and to educate my community on this illness. It is an invisible illness and most live in silence with it. But why should we, It is part of us and we deserve the respect like anyone else. Well I am sorry to upset you with my life but it is the true me. Some days I was to be out and visit with others, while another day I am laying in my bed in so much pain I could die. Some would chose this method to get away or out of the pain but for me I am a fighter. I put everything in God's hands and ask him to guide me through this and to help others understand. I will say that the one blessing of fibromyalgia is it slows us down. It makes us reevaluate our life. We see things more clearly and know what is really important in our life. God, myself, family, friends, and helping others. That is I was sitting here with one slice of bread,starving and unsure where the next meal is coming from. I would still give you have of my bread if you were in the same way. Why you ask because I have faith in God and know he will guide me i the right way. Anyway our group is up and going well. We are working on becoming a non profit organization so we can start fundraising for research and more. Our problem is the cost of the tax forms we have to fill out. So if anyone would like to donate to our cause please let me know. We do not want to suffer alone. ~~I'll try again Tomorrow~~
Wednesday, January 11, 2012
It has been a very warm winter for us. Today started out so pretty and now the wind is blowing hard and temps are dropping. Good Night for us Fibromyalgia sufferers too cuddle with a blanket and warm socks while in our snuggie pj's. I might even add a cup of hot chocolate with marshmallow. Our fears is the weather change witch cause our fibro-pain into a lion reaction. Our night will be sleepless and our body will feel like we just ran around the world non-stop. Its been a hard winter for me. The cold makes me hurt but being warm all the time doesn't kill the germs. Illness has hit over and over again. I have had the flu 4 times since September. Wow! So this fibromyalgia just does not play fair. So afraid to turn the next corner, who knows what lies beyond our view. Afraid it will be worse because 99% of the time it has been and really how much more can one person take of all this illness?
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